Brain Cancer Facts

  • An estimated 700,000 Americans are living with a primary brain tumor

    • 488,600 or 69.8% are benign​

    • 211,400 or 30.2% are malignant

  • In 2020, an estimated 87,240 people will be diagnosed with a primary brain tumor

    • 61,430 will be benign​

    • 25,800 will be malignant

    • An estimated 18,020 people will die from brain cancer in 2020

  • Glioblastoma is the most commonly occurring primary brain tumor

    • Accounts for 14.6% of all tumors and 48.3% of all malignant ​tumors

  • The average survival rate for malignant brain tumors is only 36%

    • For glioblastoma, the survival rate is only 6.8%​

  • Unlike other types of cancer, brain cancer is graded from I-IV instead of being staged

    • Grade I tumors are typically non-malignant and are the least aggressive grade of brain tumor​

    • Grade IV tumors, such as glioblastoma, are malignant and are the most aggressive grade of brain tumor

  • In diagnosed adults, malignant brain tumors cause an average of 20 Years of Potential Life Lost, also called YPLL

  • In children aged 0-19, brain tumors result in an average of 80 years lost 

  • There are only 5 FDA approved drugs and one device for the treatment of brain cancer

  • Brain cancer has the highest per-patient initial cost of care at around $150,000

  • Brain cancer also has the highest last year of life cost, costing between $135,000 and $210,000

Source: National Brain Tumor Society https://braintumor.org/brain-tumor-information/brain-tumor-facts/

Rare Cancers Facts

  • As a group, rare cancers account for about 250,000 deaths in the United States

  • Rare cancers make up more than 25% of all new cancer diagnoses

  • Rare cancers are those which have less than 40,000 new cases each year

    • Many rare cancers have less than 5,000 new cases per year

  • Rare cancers have a survival rate of 55% for men and 60% for women

    • As a group, common cancers have a survival rate of 75% for men and 74% ​for women

  • Since there are fewer patients with rare cancers, the support community does not exist in the same way that it exists for common cancers

  • Lack of patients also means less funding is available for research and treatment of rare cancers

Sources: Ridin' On https://www.ridinon.org/rare-cancer-facts and Cure Today https://www.curetoday.com/view/rare-cancer-reality

How Cancer Affects Family

  • Roles between partners often change

    • A person who is usually in charge may have trouble being more dependent ​

    • A person who is not used to being in charge may have trouble taking charge and providing care

  • Partners may have to pick up some of the responsibilities of the other person

    • Cancer treatments and cancer itself can leave patients tired and they may be unable to handle their normal tasks or responsibilities​

  • Relationships between friends and family members change, whether that be for better or worse

    • Sometimes cancer brings family and friends closer and helps bond people together​

    • Other times cancer makes existing problems worse. This can push people further apart and hurts their relationships

  • Changes in children's behavior are very common

    • Younger children may become ​clingy and impulsive

    • Older children and teens may become angry, distant, and may withdraw from family and friends

  • Older children may have to act as the caregiver for a parent with cancer

    • This can be very difficult for both the parent and the child​

Source: Cancer.net https://www.cancer.net/coping-with-cancer/talking-with-family-and-friends/how-cancer-affects-family-life