On a local level
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Provide support, education and services aimed at improving the quality of life for patients and easing the strain on caregivers
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Support patients and caregivers with navigating the complicated healthcare system
On a global scale
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Raise awareness and funding for research to treat rare cancers, like Glioblastoma
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Impact legislation related to grief counseling and support services for children suffering from the loss of a loved one or caregiver
OUR MISSION
Supporting patients and families facing a rare cancer diagnosis
700K
estimated number of Americans living with a primary brain tumor
7.2%
5-year survival rate for
Glioblastoma
1.5M
children are living in a single parent household because of the death of a parent
$150K
per-patient initial cost of
care for brain cancer patients
250K
estimated number of deaths associated with rare cancers in the US (2018)
OUR STORY
When Karen was first diagnosed, Shakespeare’s words, “Though she be but little, she is fierce” almost immediately became our rally cry. It fit the barely five-foot-two woman with the huge heart and spirit perfectly. Karen fought bravely and loved those around her fiercely; finding laughter and gratitude each and every day. We chose our name to reflect her spirit.
The rhinoceros means a variety of things to different cultures. To some, it is a symbol of protection. In other cultures the rhino means gratitude, longevity, strength and resilience. The rhino is also believed to evoke a broader sense of perspective.
Following her surgeries, Karen struggled with minor speech and memory issues, the word “rhino” was elusive, but she never gave up trying to recall the name of the mighty animal. For her, and now for us, the rhino is a reminder of resilience and finding laughter in even the most difficult times.
Jack Stevenson
Executive Director
Dave Stevenson
President
Kate Neville
Vice President
Eileen DeLucia
Secretary
Andrew Treon
Treasurer
Jen Holstein
Fundraising Director
Andrew Holstein
Business Development Director & Registered Agent
Adrienne Basedow
Social Media & Content Director
Meet Our Team
Jack Stevenson
Executive Director & Co-Founder
Dave Stevenson
President &
Co-Founder
Eileen DeLucia
Secretary
Andrew Treon
Treasurer
Adrienne Basedow
Social Media & Content Director
Melissa Cornibe
Volunteer Director
Andrew Holstein
Business Development Director
Jen Holstein
Fundraising Director
Jim Holstein
Outreach Director
Bailey Karnash
Creative Director
Andrea Vasile
Community Relations Director